Dear Friends, Supporters, and Kind-Hearted People,
I hope this message finds you well. My name is Shan Victor, and I am the father of a brave little boy named Ethan Lorenzo, just 3 years old. I’m writing this with a heavy heart, hoping and praying for your compassion and support.
Ethan has been diagnosed with a rare and devastating genetic disorder called Metachromatic Leukodystrophy (MLD) due to ARSA mutations. This cruel disease is slowly taking away his ability to move, eat, and even breathe freely.
Just a few months ago, Ethan was an active and joyful child. Today, he is facing the heartbreaking symptoms of this condition:
Loss of ability to walk independently
Muscle stiffness and painful episodes
Difficulty swallowing and feeding
Chronic constipation and urinary issues
Frequent respiratory infections and pneumonia
Developmental regression and neurological decline
We are from Karachi, Pakistan, and after seeking medical advice locally, we were referred to The Children’s Hospital of Philadelphia (CHOP) in the USA—a world-renowned center for treating MLD. Their Leukodystrophy Multidisciplinary Team has offered hope through intensive evaluations and a personalized treatment plan that includes:
Neurology & Complex Pediatric Care
Physical, Occupational & Speech Therapy (with swallow testing)
Nutrition Support & Genetic Counseling
Endocrinology & Rehabilitation Medicine
Unfortunately, the cost of this treatment is far beyond our means. As a father, I am doing everything I can, but I cannot do this alone.
🙏 I am humbly asking for your financial help to give Ethan a chance at life. Every contribution—big or small—brings us closer to saving him from this devastating disease.
You can support us through the following account:
Account Title: SHAN VICTOR
IBAN: PK55BAHL1038007102051101
Branch: 1038 – Saddar Branch, Pakistan
📧 Email: shan.victor44@gmail.com
📞 Contact No: +92 341 2163970
We believe in miracles—and we believe in the kindness of strangers. If you can’t donate, please share our story. That, too, is a blessing.
With deepest gratitude,
Shan Victor
(Father of Ethan Lorenzo)
Photo Caption Suggestion:
“Ethan Lorenzo, age 3 – still smiling through the pain. Please help us give him a future.”
